Health Policy Roundtable
On September 7, 2016, CCTA members heard from a physician researcher, patient advocate, and manufacturing representative on why clinical trials awareness matters — and whether informing patients about clinical trials opportunities should become part of physicians’ standard of care.
Policy Roundtable 2016 – Do Patients Have the Information They Need About Clinical Trials?
Policy Roundtable 2016 – What’s the Disconnect Between Patients and the Clinical Trials that Need Them?
Policy Roundtable 2016 – What Tools do Patients Need to Access Clinical Trials?
Policy Roundtable 2016 – What is CCTA’s Vision to Raise Awareness About Clinical Trials?
Clinical Trials Awareness Week
The week of May 2, 2016 marked the second annual Clinical Trials Awareness Week, co-sponsored by CCTA and other key stakeholders. During this week, national and local patient advocacy organizations, medical societies, research institutions, and others joined together to raise public awareness about the benefits of clinical trials awareness. Participating organizations took part in activities designed to leverage media coverage to reach the public and policymakers, such as:
- Development of a media toolkit for organizations to utilize to get the word out on Clinical Trials Awareness Week and the issue of clinical trial participation.
- The release and promotion of a video on clinical trials awareness. The video, titled “Stalled Clinical Trials: The Awareness Solution” explains the need for greater participation in clinical trials and how a federally sponsored awareness campaign could solve the problem.
- A tweet chat on May 5, where a patient-centered discussion aimed to raise awareness around the importance of clinical trials to help develop new medicines.
- Events at clinical research facilities around the country, bringing patient advocates and policymakers together to discuss the need for greater participation in clinical trials.
- The release and promotion of mock video, social, and mass transit public service announcements designed to help policymakers and the general public envision what a federally funded campaign might do to raise awareness for clinical research.
Congressional Outreach in Washington, D.C.
Through its 21st Century Cures initiative, the House Energy and Commerce Committee is conducting a comprehensive review of the steps Congress can take to accelerate the pace of cures. CCTA is meeting with Committee members and congressional staff to brief them on the critical need to include initiatives designed to increase public awareness about the benefits of clinical trial participation among the Committee’s priorities.